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Parkinsons and Nightmares

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wesam
Posts: 194
Topic starter
(@wesam)
Estimable Member
Joined: 18 years ago

Hello,

Does anyone have experience ofPD sufferers having nightmares that they are being attacked. This happens to my partner quite frequently and causes me to jump out of my sleep to avoid being beaten to a pulp and roundly cursed;).

Apart from sleeping in the spare room, is there anything I can do?

Thanks

Wesam

13 Replies
Posts: 4
(@chris_3503)
New Member
Joined: 18 years ago

RE: Parkinsons and Nightmares

Hello Wesam,
Sorry to hear your problem. Well I am not a physician but I can assist you some useful info regarding your partners problem. Here you can check it out : [link= http://www.sleepdisordersguide.com/night-terrors.html ]http://www.sleepdisordersguide.com/night-terrors.html[/link]

Regards,
chris

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Posts: 4259
(@jabba-the-hut)
Famed Member
Joined: 20 years ago

RE: Parkinsons and Nightmares

To wesam
It is probably a good idea to have a chat with his consultant about this. I have a client who was having similar 'problems' - very graphic nightmares, mainly involving a tractor (!). His wife was forced to move onto a mattress on the floor beside him, as even though he is virtually immobile during the day, his legs and arms would flail as he tried to get away from the tractor! An alteration in his meds has meant that his sleep is less disturbed, although he still admits to having very vivid dreams. His wife is back in bed too!

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ramadani
Posts: 953
(@ramadani)
Prominent Member
Joined: 18 years ago

RE: Parkinsons and Nightmares

my grandmother doesnt have parkinsons - but she does have other complications which she takes medication for. she used to have severe mood swings - but now she has vivd dreams at night and nearly punches my poor grandpa to bruises! he just wakes up - (usually around 1-2am) and roles her over so she is punching the other side of the bed...sometimes this works, sometimes she just roles right back over and procedes to kicking or punching again.

not sure this info could help - but thought i would post...

Ada

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wesam
Posts: 194
Topic starter
(@wesam)
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Joined: 18 years ago

RE: Parkinsons and Nightmares

Hi all, thanks for taking the time to respond.

Chris - had a quick look at the link, it seems to be directed towards childhood issues, will investigate further as I may have missed something.

Jabba The Hut - we mentioned it to our GP who thought it was hilarious, it can be funny sometimes, like the other night when he woke up shouting "he's up a tree" and collasping into hysterical laughter. We're seeing the consultant on Friday and will mention it again.

Ramadani - sometimes I do wake up if I 'sense' an attack so I'll try turning him over. Most of the time I'm too knackered after working a full-time job, so the first I know of it is a punch or a kick accompanied by some very ripe language:D.

Take care all
[sm=sleep.gif]

Wesam

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killchar
Posts: 481
(@killchar)
Reputable Member
Joined: 19 years ago

RE: Parkinsons and Nightmares

Interesting thread...Thanks for starting it Wesam, though I'm sorry for your troubles.
I have been doing some researching on night terrors for myself. I'm 29yrs old, and they've plagued me as long as I can remember. But then, I have significant memory problems...Which brings me to a question for you. Are there memory problems associated with your partner? If so, were they or night terrors evident before the diagnois of PD?
~Gayle

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wesam
Posts: 194
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(@wesam)
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Joined: 18 years ago

RE: Parkinsons and Nightmares

Hi Killchar,

Yes there are problems with memory sometimes which has come with the onset of PD. He's had vivid dreams in the past but they were mainly work related, he'd often shout out instructions or a telling off to one of his staff. These dreams are different, as I said before, he always seems to be fighting off an attack.

I must say he's been quiet for the last few nights and I've been sleeping like a baby - lovely;)

Wesam

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killchar
Posts: 481
(@killchar)
Reputable Member
Joined: 19 years ago

RE: Parkinsons and Nightmares

Glad to hear it 🙂 Thanks for the info, since the memory probs and night terrors didn't show till PD showed my theory is ca put [&:]
I wish the best for you and yours,
Gayle

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Posts: 63
(@tedhutchinson)
Trusted Member
Joined: 18 years ago

RE: Parkinsons and Nightmares

[link= http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=17235427 ]Sleep disorders in Parkinson's disease: facts and new perspectives[/link] shows sleep disturbance is befairly common inParkinson's.

[link= http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=17230473 ]Vitamin D and Parkinson's disease-A hypothesis.[/link]Dr's. Harold and Jonathan Newmark (father and son), present the considerable evidence that vitaminD deficiency is one cause, perhaps the major cause, of Parkinson's disease. Drs. Newmark remark on a 1997 case report in which a patient with Parkinson's disease steadily improved when treated with 4,000[link= http://www.vitamindcouncil.com/reference/glossary-I.shtml#IU ]IU[/link] daily. All clinical interventional studies—in any disease—should use enough vitaminD to obtain and then maintain blood levels at levels obtained from natural summertime sun exposure (at least 50[link= http://www.vitamindcouncil.com/reference/glossary-U.shtml#units ]ng/mL[/link]). For many people, the aged, African Americans, and the obese, this require 5,000IU daily. If you know anyone with Parkinson's disease, suggest they start taking 5,000IU a day. If they or their doctor are concerned about toxicity, have them read [link= http://www.ajcn.org/cgi/content/abstract/85/1/6 ]this paper[/link]. If they can't do that, have the doctor measure their [link= http://www.vitamindcouncil.com/reference/glossary-%23.shtml#hydroxyD ]25(OH)D[/link] and calcium levels every four months. Both patient and doctor will soon realize that 5,000IU is an effective dose. This paper shows [link= http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=506781 ]how 4000iu a day helps normal depression[/link] and [link= http://www.biopsychiatry.com/parkinsons-depression.htm ]There is a high rate of depression in Parkinson's subjects[/link]

Not only will an effective strength of vitamin d3 improve the Depression associated with Parkinson's it will also help prevent the [link= http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=AbstractPlus&list_uids=16376802 ]Fractures and osteoporosis associated with Parkinson's[/link]

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killchar
Posts: 481
(@killchar)
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Joined: 19 years ago

RE: Parkinsons and Nightmares

how much sun would that be if you were to get your DRV of Vitamin D directly from the actual sun?

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Posts: 63
(@tedhutchinson)
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Joined: 18 years ago

RE: Parkinsons and Nightmares

ORIGINAL: killchar

how much sun would that be if you were to get your DRV of Vitamin D directly from the actual sun?

Depends on your skin colour and where you live and the time of day you get your sun.
Assuming you are Caucasian and haven't been in the sun this year so your skin is while then assuming the sun was warm enough and you were able to get out of the wind, approximately 10-20 minutes laying naked in the sun would provide around 12,000iu. Which is roughly 3 days supply, so repeating this 3 times a week should both deal with your current needs and top up your stores. #do be aware that if only 5% of your skin is exposed then your total amountof Vit d produced will only be 5% of 10-12000iu so those who only expose hands & Face and do so standing upright will not make theirdaily usage very often.
An Asian brown skin will take about 5 times as long to make the same amount and an African/Caribean black skin needs ten times the exposure.
You can see the orgins of skin colour and ideal latitude <a class="go2wpf-bbcode" rel="nofollow" target="_blank" href="here">here

If you stay out too long any surplus cholecalciferol on the skin is itself depleted so you cannot overdose from vitamin d3 from sun exposure. The detailed description of the process [link= http://www.uvguide.co.uk/vitdpathway.htm ]in Lizard skin here[/link] is exactly the same as inhuman skin so thisanimation shows you how it works.
Vit D3 is a fat soluble vitamin and as the above description shows the process is heat driven and in the heat we sweat and sweat is oily so absorbs the D3.This means a shower/swim immediately after you've been sunning yourself could mean a lot of the D3 you've just made is rinsed off. I try tojust go indoors/put on a shirt and leave at least half anhour after sunbathing before I swim/shower/and put onsunscreen. As far as I know you can repeat the process through the day, leaving a couple of hours between sunning sessions, that way you could build up possibly 50,000iu in a full day.
However the safety of Vitamin d3 is such that it is quite safe and the information generally available online about it is out of date and inacurrate. Someone actually limiting their intake to the official DRV will be vitamin d insufficient and will remain so.
In the UK Recommended daily amount:is 5 micrograms that's 200iu and is usually followed by the warning Poisoning: this vitamin is fat-soluble so can accumulate in the body and overdoses are dangerous. This is total codswallop and shows just how out of date the health professionals are and how stupid they think the general public are. Do they really think the public are conned by such ridiculous statements. [link= http://www.ajcn.org/cgi/content/full/77/1/204 ]Given your body uses 4000iu daily[/link] how can adding 200iu ever cause an overdose situation? Your body has to store enough to last all Winter so it's used to dealing with large quantities and storing huge amounts to get through from October to March when the sun is too low in latitudes above 45 for UVB to penetrate.
It's a bit like saying will my fuel tank overflow if I use 4 litres a day but only put in 200ml.
Perhaps the same doctors think if they spend £4000every day of the yearbut onlyput £200 every dayinto their bank account, at the end of the year they'll have a good lot of savings to deal with.

Worrying about overdose in the UK is a bit like worrying about drowning in the desert.

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killchar
Posts: 481
(@killchar)
Reputable Member
Joined: 19 years ago

RE: Parkinsons and Nightmares

wow. I'll need some time to check out the sites and to truly absorb (hehe) the information--but it is definately interesting stuff!
ps--I love your tag 🙂

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killchar
Posts: 481
(@killchar)
Reputable Member
Joined: 19 years ago

RE: Parkinsons and Nightmares

I just happened across this article today, it links REM disturbances with parkinsons:

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Posts: 12
(@hava-getz)
Active Member
Joined: 21 years ago

RE: Parkinsons and Nightmares

Hi I hope you can understand my spelling but I dyslexic. I had been working with PD client for few years now. The nightmares are part of the side affect of the medication. If they can contact the PD nurse she will be able to give them better explanation and maybe some help. I make my Clients ring the nurse as soon as they are not happy with anything becouse sometime changing the way they take tablets helps. They can also ring the PD help line on 0800 800 0303 it is 9am till 9pm. So try… Good luck Hava

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