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multiple sclerosis

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Posts: 2482
Topic starter
(@mysticmoon)
Noble Member
Joined: 20 years ago

Hi Everyone,

Was just wondering if anyone knows much about multiple sclerosis? My best friend who is 23 was diagnosed with it about a year ago... I was wondering if anyone has any personal stories they are willing to share... Or things that they have found that have helped.

Looking forward to any responses

Much love 🙂 x~x~x

8 Replies
Posts: 88
(@willowtree)
Trusted Member
Joined: 20 years ago

RE: multiple sclerosis

Hi I posted a reply on my thread, theres some stuff in there about my experiences but if theres anything else specific I'll try and help

Willow x

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Posts: 2482
Topic starter
(@mysticmoon)
Noble Member
Joined: 20 years ago

RE: multiple sclerosis

Thank you Willow Tree I have had a look...

[sm=hug.gif]

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Posts: 275
(@aragorn)
Reputable Member
Joined: 20 years ago

RE: multiple sclerosis

Hi Leigh
You asked on another thread about acupuncture and MS.
I spoke to my partner about this: she works at an MS centre providing traditional oriental acupuncture treatment.

This is the gist of what she said:
It very much depends on the individual patient how they progress, but it ranges from "extremely well" (i.e. significant improvement in symptoms, quality of life, and wellbeing) to "not much progress".
She finds that there is a very high return rate of patients, and she believes that even those that make very little or slow progress experience enough benefit to keep them coming back for treatment. Sometimes in treating chronic systemic conditions such as MS, one has to ask, "What would I be like if I didn't have treatment" as opposed to "How much better am I feeling".
At the centre, they also offer a lot of shiatsu treatment and HBO (hyperbaric oxygen) treatment. Again, some MS sufferers use all three treatments and experience mild relief, whilst others just see my partner for acupuncture and find that they need no other therapy.

So, it's a mixed bag, and this may not be very comforting or much help. My partner finds that, generally, the patients that benefit the most are those that adhere to the lifestyle advice she gives, regarding diet, rest, exercise and so on. Sometimes, these are the hardest changes to make.

As with any condition, because traditional oriental acupuncture is a complete and coherent system of medicine in its own right, it is always worth trying. But at the end of the day, it's horses for courses, and whatever brings relief and wellbeing is a valuable gift.

Yours
Aragorn

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Posts: 2482
Topic starter
(@mysticmoon)
Noble Member
Joined: 20 years ago

RE: multiple sclerosis

HI Aragorn

Thnak you soooooooo much for all the info and the input! I really do a appreciate it, you are a star! :o)

[sm=hug.gif]

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Posts: 1462
(@anahata)
Noble Member
Joined: 21 years ago

RE: multiple sclerosis

Link to WillowTree's Thread -

Andrew. 😉

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Posts: 3
(@summerrain)
New Member
Joined: 20 years ago

RE: multiple sclerosis

when i was dx with MS my doctors didnt put me on the ABC drugs right off the real but i was put on neurontin to keep the tingling to a limit.......since 1993 i have had little problmes with my MS most you see me would never guess i had MS. I dont let the illness take root of my life i know i have the illness but i dont let it control me. About a yr ago the MS got abit on the ugly side and had to agree to one of the ABC drugs. I have RRMS and the shots that worked best for me was the C shot.....Copaxone......have been great. went from some minor limping back to my greek dancing and enjoying life.

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Posts: 3
(@77springmoon)
New Member
Joined: 15 years ago

Multiple Sclerosis Info

Sorry about your friend, it's good that she has a friend like you:). I have MS and everyone with has a different set of symptoms, experience. If you would like information in the form of booklets, ie. What is MS? etc, just look on the MS website. There is no charge, but donations accepted.
Hope this helps, there is so much I could say, but you being supportive and accepting of your friends' diagnosis and just listening will really help her.

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myarka
Posts: 5221
(@myarka)
Illustrious Member
Joined: 16 years ago

Hello 77springmoon and welcome to Healthypages,

Unfortunately this thread is several years old, so it's very unlikely that you will get a reply to your post.

On behalf of the moderators,
Myarka.

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