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motor neurone disease

 
Neurological Problems
Last Post by Anne Mary 6 years ago
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Anne Mary
Posts: 405
 Anne Mary
Topic starter
Mar 19, 2019 10:51 am
(@anne-mary)
Honorable Member
Joined: 12 years ago

I have just been diagnosed with motor neurone disease, or ALS. Does anyone have experience with this? I can only find very old threads. xA

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Posts: 4259
 Lynora
Mar 19, 2019 10:55 am
(@jabba-the-hut)
Famed Member
Joined: 20 years ago

I'm sorry to hear this Anne Mary. Have you received any support or guidance about where to get information from your consultant?

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Anne Mary
Posts: 405
 Anne Mary
Topic starter
Mar 19, 2019 8:26 pm
(@anne-mary)
Honorable Member
Joined: 12 years ago

I'm sorry to hear this Anne Mary. Have you received any support or guidance about where to get information from your consultant?

Well the NHS is never fast 🙁 but they promised me some info like that. Meanwhile I found sites and forums on the computer but most of it is rather American.

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Posts: 4259
 Lynora
Mar 20, 2019 4:19 pm
(@jabba-the-hut)
Famed Member
Joined: 20 years ago

I'm in Scotland, so probably not much use, but our local support group shows this link for England:

also,

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Anne Mary
Posts: 405
 Anne Mary
Topic starter
Mar 20, 2019 7:28 pm
(@anne-mary)
Honorable Member
Joined: 12 years ago

Thank you Jabba, I have just now discovered that site! So much to do at this stage and everything takes so long. Just for a blue badge application "the council will make a decision within 12 weeks" .....

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