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CIDP MISERY

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Topic starter
(@loobylou)
New Member
Joined: 18 years ago

Hi guys new to the forum. :(feeling really sorry for myself!! Finally diagnosed with having CIDP last feb although had symptoms since 1995 following nerve and tendon transplant. I've had 7 lots of IVIG to which no improvement was noticed I am now on steroids - Prednisolone 40mg a day, I am really scared as I am so ill and weak can no longer work and normal functioning is a trauma! Plus don't want to grow a hairy chin and moon face!!:eek: Anyone had similar experiences?? Thankyou and sorry for being so miserable

looby
xxx

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