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Thyroid Madness

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Topic starter
(@samanthaj)
New Member
Joined: 15 years ago

I hope someone can help me! I had radiation done on my thymus gland when I was born in 1947. I was diagnosed as hypothyroid in 1975 and 1976; taken off Synthroid due to "normal" readings; put back on in the 80's; taken back off because dr. said I was within "normal range" , but had every symptom of hypothyroidism known to man. Still, they said I was in the "normal range", and was told to see a shrink and go on a diet. (I gain weight like most people drink water!) Also found out that I have two small goiters on either side of my thyroid, but docs doing nothing but "watching them to see if they grow. Duh! New Endocrinologist put me on 25mg of Synthroid recently, and feel only slight difference. I am at a loss as to what to think or what to do. I wish I was someone else.

15 Replies
Posts: 2
Topic starter
(@samanthaj)
New Member
Joined: 15 years ago

Hi, I'm Samanthaj -- sorry I posted before I said hello -- my so bad!:eek:

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Tashanie
Posts: 1924
(@tashanie)
Noble Member
Joined: 15 years ago

Don't worry. It sounds as if you are having a tough time 🙁 25microgram is a low dose of Thyroxine. It sounds to me as if you need a higher dose but I think you have to trust your doctors. If they were NOT keeping an eye on you I would be worried. It can be tricky getting the dose adjustments right sometimes.

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CarolineN
Posts: 4760
(@carolinen)
Famed Member
Joined: 16 years ago

Hi Samanthaj

I can sympathise, having had long-term thyroid problems myself. May I suggest you read previous threads which cover thyroid problems as there is a lot of information on them that you might find helpful, see but do come back to ask for more information when you have read through them.

All the best

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Holistic
Posts: 27515
(@holistic)
Illustrious Member
Joined: 21 years ago

Hi, I'm Samanthaj -- sorry I posted before I said hello -- my so bad!:eek:

Don't worry. It sounds as if you are having a tough time 🙁 25microgram is a low dose of Thyroxine. It sounds to me as if you need a higher dose but I think you have to trust your doctors. If they were NOT keeping an eye on you I would be worried. It can be tricky getting the dose adjustments right sometimes.

Hello and a warm welcome to Healthypages to you both. 🙂

This is just to let you know that I have merged Samanthaj's thread of the same title in New Forum Members and Tashanie's reply to it into this thread in Metabolic Disorders, since it looked as if both belonged here really.

Samanthaj, if you'd care to post again in the New Members Forum by way of a general hello and introduction, please feel free to do so.

Kind regards,

Holistic
Healthypages Moderator

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pollypips
Posts: 107
(@pollypips)
Estimable Member
Joined: 18 years ago

Hiya, sorry this is a bit late, just wanted to say perhaps it's not your thyroid that's the sole cause of your symptoms, a lot of auto immune disorders have similiar/overlapping symptoms and are cousins. A 'normal' ranfe t4/tsh may only be one piece of the jigsaw :)x

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Reikiangel
Posts: 6138
(@reikiangel)
Illustrious Member
Joined: 21 years ago

Saw my Endo this week and so far he has 'left me alone' i.e has allowed me to continue with homeopathic treatments since January. This week he told me that it's not working and my levels have gone up again since last blood test. He really wants me to go on Carbamazole but I asked him if hand on heart - could he promise me that the dosage he has prescribed would work first time? He admitted he couldn't so I said that I did not want to be a guinea pig while the dose was altered up or down. Quality not quantity of life was more important to me. I then asked him about the risks of heart attack and osteoporosis that he had warned me about at my last appt. I explained that I worked in the NHS for over 30 years and was also a Comp Therapist and that everything has to be 'evidence based' so where was the evidence that he could show me that I WAS at risk of the above? This surprised him lol but bless him, he got up some research on his computer for me to see . The thing is it was all about SEVERE Hyper and I asked him if he thought I was severe? He said no, I was more 'moderate' than severe, and then the age range was between 60-90 and I asked him did he think I was that old ? lol. He admitted that finding research I was after would be patchy as everyone has gone on to take the treatment. He said a 'proper' trial couldn't be done with a group that was denied treatment as that would be cruel, so I offered to be one for him. It seems I am the first person to turn down carbamazole that he knows of. I did apologise and say I wasn't trying to be difficult I just wanted all the information so I could make an informed decision. He said that I was obviously a woman who knew my own mind and body and was quite right to question! So, we have agreed for him to 'keep an eye' on me and I am seeing him the begining of Sept and he wants me to have 2 more blood tests before that appt. Bless him again though, he said that I was not closing the door on this treatment. If I changed my mind or had any more questions then I was to ring him. Meanwhile he is going to find what research he can and send it to me.
I must admit it was a better outcome than I had anticipated. I thought he might have discharged me as I was not following his advice. Also, if I was in a terrible state with this Hyper then he would have made me sign a disclaimer before I left the room!
The thing is I feel fine. I wouldn't have known I had this condition if it wasn't for going to my Dr's about something else! I sleep well at night, my heart is not thudding in my chest, I am not anxious or weepy (well, weepy yes but that's because I recently lost my husband) - all of the things that hyper causes! Since taking the homeopathic remedies my hair has gotten thicker, I'm not falling asleep during the day and I have had 3 periods on time whereas I had not had any for 4 months before. It may be the placebo effect but so what? I feel better lol.

Good luck to all you Hyper's out there. Remember it's your body, your life. If something you have been told to do or take is worrying you then SAY SO. Don't just go along with what the doctor's tell you. Make INFORMED decisions about your treatment. Just don't do anything silly like suddenly stopping your meds without talking to the doctor first ok?

Love and light

reikiangel

xxx

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Posts: 447
 hom
(@hom)
Reputable Member
Joined: 18 years ago

Hi Reikiangel,
It was very brave of you to challenge the doctor and ask for evidence! I think more people should do so. Doctors are very quick to criticise lack of evidence in complementary medicine but it's shocking how little evidence there is sometimes to support allopathic drugs.
I would encourage you to continue with homeopathic treatment if you've been happy with the results so far; it may take longer than a few months- especially as it sounds that there's a lot been happening in your life. Hom

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CarolineN
Posts: 4760
(@carolinen)
Famed Member
Joined: 16 years ago

Hi Reikiangel

As you are wanting to reduce your thyroxine levels naturally may I suggest you eat raw Brassicas - which have been shown to help inhibit the production of thyroxine (goitrogen) - [DLMURL="http://www.whfoods.com/genpage.php?tname=george&dbid=47"]see here[/DLMURL] and . The substances in Brassicas that are that have been associated with decreased thyroid function are isothiocyanates.

I have no personal experience of it as I am short of thyroxine and therefore have to avoid coleslaw, radishes, watercress and other raw cabbage-family vegetables. Cooking more or less kills off their ability to stop thyroxine. So the best way to get enough is to have fresh raw cabbage juice daily - Savoy-type cabbage if possible - probably enough juice to make a shot glass full. You'll need a juicer. To that you can add any other fruit or vegetable to make it more palatable. This is as well as your 5-a-day, not instead!

The raw juice is amazingly beneficial too, containing many beneficial plant chemicals including isothiocyanates such as indole-3 carbinol (I3C), sulphorophanes and indoles which seem to benefit the regeneration of healthy gut cells and gut bacteria, reduce oestrogen levels, and are said to inhibit tumour growth and promote their cell destruction too - [url]see here[/url] . It also contains significant amounts of glutamine which can heal gastric ulcers. Brilliant stuff - and much used and loved by the Ancient Romans.

On this [DLMURL="http://www.whfoods.com/genpage.php?tname=george&dbid=47"]same site [/DLMURL]there is a list of other goitrogenic foods you can pig out on!

Hope that helps!

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Reikiangel
Posts: 6138
(@reikiangel)
Illustrious Member
Joined: 21 years ago

Thank you so much Caroline for all the above information. I have looked at all the links and found them fascinating. I HAD read somewhere about Broccolli, Brussels etc being good for hyper thyroid's and had upped my intake but have been cooking them! I will definately increase raw cauliflower in my diet (easy to do with a healthy dip now it's getting warmer:)).

I will invest in a juicer too. Thanks again for taking the time to find this info for me

Love and light

reikiangel
xxx

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CarolineN
Posts: 4760
(@carolinen)
Famed Member
Joined: 16 years ago

Pleasure reikiangel! The benefits of cabbage was one of my projects at college and I still have the info on my laptop!

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Posts: 1
(@janine-roux)
New Member
Joined: 15 years ago

Try reading Datis Kharrazian's book "Why do I still Have Thyroid Symptoms When My Lab Tests Are Normal" or visit and joining the support group on facebook. They can possibly direct you to a doctor who can help you. dr. Kharrazian is based in California.

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Reikiangel
Posts: 6138
(@reikiangel)
Illustrious Member
Joined: 21 years ago

Just thought I would share an insight from my Homeopath today. Could my thyroid have been 'set off' by the radio active dye that was injected into me Oct 08 for the Sentinel Node Biopsy for Malignant Melanoma? How long would it stay in my thyroid before it started to cause the over-activity as I was diagnosed Dec 09? The thought had never entered my mind to make the connection but it has made me wonder now....

Love and light

reikiangel

xxx

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Principled
Posts: 3674
(@principled_1611052765)
Famed Member
Joined: 21 years ago

Reikiangel,

I'm so glad that you are being helped by the homeopathy. One thing occurred to me after a friend recently told me that the terminal condition that she had been misdiagnosed with was actually something else - have you had a second opinion?

There are a few testimonies of healing of thyroid conditions through prayer on - here's one, if anyone is interested:

[url]The doctor was not sure why I was alive…[/url]

Love and peace,

Judy

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Reikiangel
Posts: 6138
(@reikiangel)
Illustrious Member
Joined: 21 years ago

Thank you for sharing Judy:)

Love and light

reikiangel

xxx

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Posts: 1562
 ava
(@ava)
Noble Member
Joined: 20 years ago

Thyroid Madness, indeed, see: [DLMURL] http://www.thyroiduk.org.uk/tuk/news.html#Dr_McDonogh [/DLMURL] published on Thyroid UK website.

"We were very sorry to hear that Dr Brian McDonogh was struck off at a GMC Fitness to Practise hearing on 19th May 2010.

The charges include the use of a screening tool known as live blood analysis, a test known as electrodermal test; the use of Armour thyroid which was, a) an Unlicensed medication, (b) Not supported by the British Thyroid Association, (c) Not supported by the Society for Endocrinology, and d) not clinically indicated in the patient's care because her measurements were normal and there was no evidence to support a diagnosis of underactive thyroid. There were also charges in respect of medical records.

These charges date back to 2002 and we have been informed that someone at the GMC acted very unethically in respect of this case.
From what Dr McDonogh has told us, we believe that he did not get a fair hearing. When you compare the recent hearing of Dr Sarah Myhill and the recent hearings of doctors who had actually killed patients, Thyroid UK believes that the GMC itself is not fit for practise.

Dr McDonogh is now practising as Nutritionist which means he can still do most things except prescribe pharmaceuticals."

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