Pregnancy and m.e. anyone got experience?

RE: Pregnancy and m.e. anyone got experience?

Hi,

No advice I'm afraid as have no children but much sympathy - can't imagine how hard that must be being an M.E. sufferer myself.

Good luck.

There is a good site that provide might help.

[link= http://www.foggyfriends.org/index.html ]http://www.foggyfriends.org/index.html[/link]



Good Luck.
Joss
x

RE: Pregnancy and m.e. anyone got experience?

Hi there

Sorry to hear that you are feeling so lousy, especially at such an exciting time of your life. Have you thought about having reflexology? It may help with the lack of energy and fatigue you are experiencing and is fine, in fact beneficial, to have during pregnancy.

Hope this helps.

Wishing you a wonderful pregnancy journey. x

RE: Pregnancy and m.e. anyone got experience?

Hi wroufy, you can do it ! i know exactly how hard it is, stay strong!
i have had M.E for 6.5 yrs now, i had to stop working when i got the disease and aftera yearwe decided seeing as though i was forced to be at home we should try for a baby, i researched and could find no reason medically not to.
i got severe hyperemisis (extreme vomiting,not necessarily because i had M.E it was just a strong pregnancy hormonely) from about 5weeks and was hospitalised several times i stayed in bed for just about the whole pregnancy, i stayed as calm as possible,(after all he was trying to grow in a broken down body,the least i could do was keep it calm and serene),talking to my baby, playing games with him,and focusing just on him,we called him by his name from 12 weeks(we had a scan to find out) this helped me to focus away from the extreme discomfort i was in, i ate when and what i could, i wrote a diary ,( trying to eliviate some of the stress) , it was very difficult for the first 5 months, things then got a little easier as the sickness faded a little i could focus on nutrition for the first time, i enjoyed the next 3 months much more,my baby was very interactive, the last month was uncomfortable,as for any mum to be,
i regularly saw a kidney specialist as i only have 1 kidney, but he also focused on my M.E too, i wanted a c section as i did not have the energy for a long drawn out labour, the doctor compromised and induced me, hooking me up straight away to an epidural to take all the pain away (i had been against this all the way through my pregnancy,but was so shattered in the end i gave in) i just layed and waited for him to arrive,as comfortable asi could be, 16 hrs later he arrived, a perfect little angel.
so what i am really trying to say is yes it is possible, but very difficult, i have tried unsucessfully since, think all my resources were taken by my first baby, we are now happy to focus on the fact that we were blessed with one healthy child,
my health over the past 4 yrs has deteriorated looking after a child is difficult for even well mothers, you have to fight against your body the whole time, and go with the babes demands,
i was un lucky as i have no support to turn to ,just my husband who has to work,he did more than his fair share with jacob, much more.
if you have support around you it will be easier,for us it was the best decision we made, jacob is a delight, he almost knewhe had to be good,he slept well and in his own room from the first night we brought him home,as he has grown,he knows that mummy spends time in bed, and that i can`t dosome things with him, there are things thatthe guys do together like walking thedogs, going for bike rides, and being quiet whilst mummy is resting, but jacob and i do lots ofarts and crafts,reading, playing in the house, cooking when we can,we laugh and have lots of fun.
my post is certainly not to distress you,as i would not turn back the clock for 1 second, parenting withany disease or disorder is difficult, but life is a challenge, i will not let it beat me, or affect my child.
i read the books and magazines that tell you day by day how your baby is growing,they gave me strength and focus on my baby.

i wish you all the luck and strength in the world, focus on your baby,but don`t forget yourself.
julia:)