Hi!
I've just got my blood results back following my diagnosis of PVFS last Wednesday. They have come back clear. Part of me is happy that nothing nasty has been found but part of me still can't understand my tiredness.
From reading other peoples experience in the Forums I know that I am very fortunate and only have mild symptoms. I am back at work, but taking it steady, and resting as soon as I get home (I'm not actually wanting to do anything else at the moment)!
The question I wanted to ask was does being on your period make you feel worse when you have this condition? I'm on my period this week (which I don't think is helping)!
What are your experiences?
CreditonJules
your post rang a bell for me. for over a year i was suffering from depression and tiredness as well as many other symptoms. i had blood tests, swabs and scans and nothing showed up. i had 2 courses of antibiotics to no effect. i started to question myself. was i just creating all this psychologically? finally i managed to get an appointment at the hospital where i was booked in for a laparoscopy. this is where 4 small incisions are made for cameras to look at your organs. it turned out i had endometriosis and a cyst on my ovary. they were able to treat me in the same operation. it was only 3 weeks ago but i immediately felt better, and it was a relief to have an explanation. i was a bit uncomfortable for a week after but the scars are small.
have a look on some web pages for endometriosis and see if the symptoms fit (even a frozen shoulder for me!) apparently this is actually quite common but doctors for some reason often fail to pick it up.
good luck.:)
Perhaps its a chicken and egg situation..
I have been working with people with many different problems for years now, and I am beginning to see a different picture of endometriosis developing.
I used to sell drugs for migraine, and many other conditions, and I knew a lot about the clinical research into those conditions. Migraine begins with a wave of neurological activity, and this is the first line of its definition. I never really took much notice of this in those days, it was just a fact.
Years later, I discovered that irritable bowel syndrome (IBS) also begins with a wave of neurological activity (I had never sold IBS drugs so I didn't know this!). Well, I couldn't wait to see if I could stop this reaction using the same method as I had stopped my migraine 19 years earlier. I used a technique that gradually reduced the symptoms until they disappeared.
Well, one night, I was up late at night, the trigger for my IBS normally, when I got that familiar pain in my abdomen. I started to use my routine, and it JUST STOPPED. This could have been a fluke, but it happened on the next two occasions so then I was sure that it had worked.
But - what had actually happened? There had been no diarrhoea as a result of that pain, but my logic had believed that the diarrhoea was causing the pain. I thought about this for quite some time.
Then I wondered, "Was the pain the direct result of the wave of neurological activity?" Yes - I reckoned it was. So the "Wave of neurological activity was a BLAST of electricity firing off into my bowel! Well that made sense. It also explained the searing pain of migraine, and the off-the-scale pain of many neuralgic conditions. I have found that this technique to switch of the electrical surges has helped with countless conditions.
I then realised that this electricution, repeating in one place could really cause the inflamation and then if it carries on, it would end up with tissue breaking down!
This also explained arthritis. I could never understand why, when I was elling arthritis drugs, they said that the condition begins with pain, then inflamation, and then actual tissue damage.
Well, it turned my thoughts upside down. And when I read about your period pains, I just had to let you know, that switching off the wave of neurological activity to that area could prevent further damage, if this theory is right! (It is only a theory right now!).
The question I wanted to ask was does being on your period make you feel worse when you have this condition? I'm on my period this week (which I don't think is helping)!
Writing from a personal view point.
I started suffering with very bad energy issues after having my last 2 children in 2000 and 2001(22 months apart). In the beginning it was just awful and at one point I seriously thought my body was shutting down. Over the years things have improved and I have learnt to manage my symptoms of fatigue and lethargy better.
Your question on, does it worsen during your period? Oh boy, yes, for me anyway!!! It can get really bad, but having a family forces me to keep going, to the point I can:o. I do count my blessing that it is not as bad as it used to be:), but during my monthly cycle I am fighting an internal battle, which is silly because I lose every time. And then have to pay the price for trying to be all everyone needs me to be.
RxXx :025: