Notifications
Clear all

Newly diagnosed with Fibromyalgia

4 Posts
4 Users
0 Reactions
2,515 Views
Posts: 376
Topic starter
(@delamare)
Reputable Member
Joined: 20 years ago

Hi to all the dedicated healthy page readers,[sm=wave.gif]

I will sum up in short the scenario to bring you up to speed otherwise it would take me ages....[sm=sleep.gif]
At 15 (whilst going through the final year of school) I went on a french trip and returned VERY ill with Pneumonia. I actually believed I was on my way out and needless to say spent about ten weeks very ill and recouperating. I managed to sit my exams but due to missing so much school didn't achieve the A grades proposed for me. I then went on to college but found I would very easily tire, get brain fog and feel unable to muster any enthusiasm for things. I worked my butt off to pass college with distinctions and gained my first job in the travel industry. I held this job for all of six weeks then bam.....as a bolt out of the blue one day I was just unable to get out of bed. I couldn't stop sleeping and weeping and feeling poo! My boyfriend ( who is now hubbie) had to help me to do almost everything.
I had an almost constant headache and generally felt off colour with an oppressive need to doze. I went to the doctor. He ruled I was depressed. I suppose I did look down but who wouldn't but through no amount of explanation got nowhere. I saw doctor number two who ruled the headaches were migraines. I didn't agree as I know a vast number of people who suffer from migraines and none of them had a headache from hell everyday. I was sent to a psychiatrist as the doctors felt that I was opposed to their theories and making symptoms up due to normal blood tests etc. I had even paid private by then to investigate the heads with MRI scans and neurological examinations. All ruled inconclusive.[sm=banghead.gif]

I repeatedly got the symptoms for about a year then they got better enough for me to go back to work but I still suffered occasionally. I held down a job in the DSS for approx 1 1/2 years until the symptoms returned. At this point I was placed onto benefit and kindly pentioned off as I was unable to work again at 21yrs!! Later that year I got married and we moved to Hampshire. There I encountered a very sympathetic GP who was a homeopath aswell and she diagnosed M.E.

I was so thrilled that I actually had a diagnosis. I jogged along but the symptoms had spates of getting better and worse. The heads were something I learned to live with. I then after 2 yrs went into a partial remmission. We moved back to essex, bought a house and had a baby. The house was an endless stress and the pregnancy encumbered pre-eclampsia!! Needless to say the symptoms returned as I was so stressed and with a new born I was exhausted.

I am now 2 yrs down the line and finally my daughter sleeps through the night! However, for the last year I have encountered variuos new symptoms ie. numb toes and fingers, increased headaches, pain in all of my joints, painful peiods, bloating, restlessness and irritability etc. My painkillers (prescibed for my hip condition and arthritis) were doing nothing and finally at the end of my tether I went to the GP begging for help! I am only 32 and for nearly 17 yrs now on and off have lived with pain and symptoms. I demanded that something be done as all tests were normal and I was beginning to think I was going mad!

Finally a new GP suggested I read a leaflet he printed out about Fibrmyalgia. "This seems to fit you down to a tee" he said "do you agree?". Needless to say I did. He has placed me on Amitryptyline 25mg 3 times a day. I have been on these now for 5 weeks. I do actually know what a headache free day feels like again and the symptoms have improved but not all of them have gone. He is considering upping the meds for a while. I am just so thrilled to find I have a diagnosis as he believes I have had this from day one due to ME and Fibro being very near the same.[sm=jump1.gif]

3 Replies
Posts: 66
(@imanan)
Trusted Member
Joined: 21 years ago

RE: Newly diagnosed with Fibromyalgia

hi,i to have fibro,have had it for 7yrs,if you go to [link= http://www.fibromyalgiauk.com ]www.fibromyalgiauk.com[/link] it is a very useful site,just pm me with anything you want to know and ill try my best to help.

Reply
Posts: 0
(@Anonymous)
New Member
Joined: 1 second ago

RE: Newly diagnosed with Fibromyalgia

Hi Delamare

I'm so sorry to hear about your diagnosis of Fibromyalgia. I am treating a client at the moment with Aromatherapy, MLD and Personal Training - she is a very determined lady and refuses to let the condition get the better of her, although she too has down days.

I am by no means an expert in this field but if you would like to e mail me I will bounce your message on to my client. Sometimes a problem shared ........ She has been going to a clinic in London for blood tests that the NHS won't do and has been getting some medication fromAmerica. If your GP is tuned in to the holistic/complementary side of things she may be sympathetic when presented with information from another doctor who is specialising in the subject.

either e mail me direct atenquiries@mandarintherapies.co.uk or visit my web site [link= http://www.mandarinleisure.com ]www.mandarinleisure.com[/link] and send a message from the contacts page.

I wish you well.

MANDARIN

Reply
Posts: 892
(@iceni)
Prominent Member
Joined: 21 years ago

RE: Newly diagnosed with Fibromyalgia

Hi claire

I've just replied to your polymyalgian thread. Strangely, my mum has PMR and Fibromyalgia, and I have Fibromyalgia.

I take glucosamine and chondritin too and think its helped. But the best help for me has been reflexology and massage.

I am so much better these days. I have reflexology at least fortnightly and am the best I've been for years now.

I also developed an arythmia 7 years ago and that is a lot better too as I had a procedure this year.

But reflexology has helped the polymyalgia and fibro so much and I have treated Mum and she feels immediately much improved.

You also have to learn to pace yourself and rest when you need to and exercise as much as you can.

Anyway there are quite a few threads going back a long way which may give you more info.

Jan x

Reply
Share: