Hi all,
I am off to see a rheumatologist at the end of the month as my gp thinks I have fibromyalgia or CFS - she's trying to figure it out! Personally I think I've got both! :-s
I understand that one of the symptoms is sleep disturbances? I have quite recently had an increase in Sleep Paralysis - where I believe I'm awake but can't open my eyes or move, I also hear everything that's going on around me (and sometimes hear things like people in the room when they aren't), it gives me palputations but I also assume I'm not getting the right sort of sleep, even though I think I'm sleeping. It's a strange thing to describe as it's like being awake but asleep :confused:
I'd be interested to hear if anyone else suffers from something similar
Sian
I have fibromyalgia but for me its more of an I dont sleep issue. I sleep about 2 hrs a night. I find if I lay to long in one place even if Im comfy I end up really sore hence I dont get much sleep....
Paula
xxx
Hi Sian
I have both too! My problem when it was bad was poor quality of sleep because of pain in the muscles - moving was very uncomfortable. Lack of sleep then contributes to the problems!
So, sorry, can't help there.
Love and Light
Hi Siany
I don't have CFS or Fibromyalgia - so I can't offer any advice from a personal perspective. I am bipolar though, and during any prolonged periods of depression I suffer really badly from random intense muscular pains - which move to a different part of the body when the previous one sorts itself out. Because of this I'm starting to give more credence to the mind-body connection wrt mood triggering/manifesting/worsening pain in the body. Now that my mood issues are resolved, the pain has gone.
I'm in a bit of a rush now, but I recall reading of a connection between low vitamin D status and fibromyalgia. Perhaps you could do a web-search and see if you can find something of interest? Though, if it sounds like something which you might wish to try it would probably be sensible to visit a nutritionist and have your diet and lifestyle assessed properly... before you consider adding random individual supplements (which might have an effect on other nutrients and cause imbalances).
My overall feeling, whenever someone comments on chronic health problems, (and I apply this advice to myself), is to look at your diet and lifestyle. The better your general health the more effective any form of treatment, whether complementary or orthodox, is likely to be. Plus, your mood will improve making you better able to cope with physical health issues. You can seek out guidance on overhauling your diet/lifestyle - but simply eating less animal fats and sugar, and eating more lean protein, wholegrains, and fruits and vegetables will be a very good start. Lifestyle-wise keeping your stress levels low, and getting some form of daily exercise (however limited your mobility) can be very helpful.
Ava x
Cfs or fibromyalgia.....= cortisol levels. High cortisol levels induce problems with natural sleep pattern.
Also toxins that liver can't deal with which are sent to muscle connective tissue & leaky gut. Hence pain.
Seeing loads with this just now.
Seeing loads with this just now.
Patchouli, I'm interested in hearing why you think this might be?
Ava x
Also toxins that liver can't deal with which are sent to muscle connective tissue & leaky gut. Hence pain.
Seeing loads with this just now.
I dont really understand what you mean here?
Paula
xxx
Thanks for your replies... I just wondered if anyone else with FM had sleep paralysis or if it was just a case of not sleeping or waking up in the middle of the night which seems to be the biggest sleep problem.
When I told the rheumatologist about my sleep paralysis she looked surprised :s never a good sign!! hehehehehe
i have had sleep paralysis in the past, pre cfs; quite unsettling first time. i do wake during the night also. in chinese medicine they have the organ clock, i.e. colon meridian; 5-7 a.m. :: gall bladder; 11-1 a.m. :: liver; 1-3 a.m. etc...if you wake at similar times at night it could be during the transition from one organ high phase to another. conversely during the day you feel tired during the high phase of a poorly functioning organ meridian, i.e. small intestine; 1-3 p.m.
i saw something on tv about sleep paralysis once; the brain produces a chemical to paralyse you so you don't act out your dreams, sleep walkers may not produce enough and sometimes it continues after waking. a cat that had unfortunately lived it's whole life in a lab had this chemical's action blocked and so acted out it's dreams...strangely trying to what seemed like to catch a bird. c.man...
Aw poor cat! 🙁 I use to sleep walk when I was younger now I just seem to wake up inside my body that can't move! Maybe I'm having some sort of out of body experience... I just wondered if it was connected to my Fibromyalgia 🙂
I do not have CFS/Fibromyalgia (althought my GP thought I had Fibro a while back but I don't), but I have suffered with sleep paralysis in the past. It is quite common and anyone can get it, not just those with CFS/fibro etc. It does generally occur when your sleeping pattern is distrubed and many shift workers report suffering with it. That's when I had it the most when I was working shifts as an auxiliary nurse. It also occurs more when stressed. I've not had it for quite a number of years now thank god. I found it quite terrifying, especially the first time I had it and it was always accompanied with nightmares too. Once my sleeping pattern improved, the sleep paralysis went.