Hello.
My niece has three children with autistic spectrum; also my son Joshua is still under hospital to be assessed for Aspergers Syndrome in November. My niece’s eldest is 13 years old Shara with Aspergers syndrome, Louise11 also Autistics and 3 year old Matthew also has Autism. They are wonderful children and full of love.
Louise has just change school and seems to be settling in ok. Shara is educated at home as she had a bad experience in her high school and could not go back.
Has anyone got storeys with families with Autism to share?
love and blessing
lightwinds
Wendy xx
RE: Autism in my family.
Hello,
None of my familywere diagnosed as beingautistic.
However,having worked for a number of years as a teacher with young people on the autistic spectrum, i think autism isn't always recognised.
So it's possible to go through the education system, or be excluded from it, without receiving the support needed.
It's down to funding and the system rather than anything else.
I have seen the results too when a school (teachers and pupils) and family work together to enable a pupil with aspergers to find a way to fufill their potential andplay an active part of the school community.
This is always joyful.
RE: Autism in my family.
Hello Bindi, I do agree" i think autism isn't always recognized". And this can be hard on the teacher at times.
I remember when Joshua was ready for nursery (at the time I was not shore what Joshua had wrong with him) I left him withthe nursery staffas he seem fine. On my return I was told that Joshua was a danger to himself and the other children:(. I was lost as what to do. But the lady that ran the nursery said that she woulds apply to the council for a one to one teacher. Joshua ended up with three different teacher before he left nursery.
Joshua was due to start infants, so off we go, but I knew that there were things wrong with josh ofwhich I explain to his new teacher (she was very young lady) and tryed to understand.
I went to pick Joshua up from school and the teacher was quite stress and said Joshua was a handful;).Joshua had a one to one at nursery, suddenly he was free:D.
Over the weeks the school decided to put him forward to hospital to see what was happing. Joshua was then put on special need register. We had allot of up's and down's in the Infants school. I think I cry so many tears during that time.
Joshua is now attending juniors and in the first six weeks he has read ten reading book and just loves it there. He now eats more, hesits on the toilet were he had never done before. his communication skillare so much better also. I took my son to my doctor many times because of his bowel problem, but I'm afraid never had any thing done, walk out many times crying and fustrated.
Only just recently I havea new doctor lady in the hospital(because the old doc retired and forgot about Joshua, long story)who has been great and had his bowls check right away. Joshua had a blockage for along time she said. So with medication and persistence we worked together and succeeded in helping him over come his bowel problem, with out an operation.
These children just need to be understoodby teachers, parents, doctors, we just all need to work together for the good of our children with Autism in main stream school.
Joshua can take time to release words, so patients is required at times, but in a class of 40, this can be difficult for teachers I know.
love and blessings
lightwinds
Wendy x
edit: I putwrong weeks
RE: Autism in my family.
It can be a long journey, and as you rightly say Lightwinds, requires lots of patience, courage and determination with everyone pulling together.
Sounds as if your storyhada 'joyful' outcome which will no doubt encourage others too.
RE: Autism in my family.
I hope so bindi [sm=hug.gif]
love and blessings
lightwinds
Wendy x
RE: Autism in my family.
Mycousin has aspergers and my nephew has autism.It was a huge learning curve with zillions of books to read to try and understand this world where very often they are boxed in as naughty or difficult.I also work with young adults with severe autism and challenging behaviour providing aromatherapy massage.As autism is amulti sensory disfunction,aromatherapy works really well,touch sound and aroma.Its a part of my therapy world that i love.x
RE: Autism in my family.
Has anyone heard about the latest news on autism - which I saw on TV here in Oz just last week - where parents of autistic children had had VERY FAVOURABLE results by cutting out wheat and dairy products from their childrens' diets...some parents were in tears (of joy) saying they could not believe the difference in their children.....do try it, and see if it helps.
RE: Autism in my family.
hello janec, great job you do [sm=hug.gif]and thank you for shareing.
Hello petcat, yes I been doing the same with josh, his food has all change and it been really good to seem him improve in many ways. Im always looking at reading up on other country and autism veiws thanks for shareing[sm=hug.gif]
blessings
lightwinds
Wendy x
RE: Autism in my family.
ORIGINAL: bindi
Hello,
None of my familywere diagnosed as beingautistic..
So it's possible to go through the education system, or be excluded from it, without receiving the support needed.
Thanks for putting this bindi.;) It means such a lot to read someone else has been through the same thing. Two of three of my "kids" who are now 20 and 24 have Asperger's Syndrome and like yours has never officially been diagnosed. My son had been seeing clinical psychologists, educational psychologists and later a psychiatrist from the age of 2 and he's now 24. My daughter was about 6/7 before she was referred to these people. To cut a long and difficult story short not one of these professionals was willing to diagnose Asperger's officially for either of them even when they started self harming as they felt trapped within their conditions. Both got depression at one stage which was a "side effect" of the underlying problem. It was a former psychiatric nurse who has a son with Asperger's who suggested my daughter had the condition......this lady wasn't treating my daughter, who by this time was 17 - she was simply a Student Advisor at the local college where my daughter had been placed on a course (against her will by the local young employment agency Connextions) She had been observing my daughter's eccentric behaviour over a period of a few weeks before contacting me and asking about my daughter's background. She asked me to read "Asperger's Syndrome" by Tony Attwood - a classic of this condition. I looked at the checklist of questions and both my daughter and my son answered a resounding YES to most of the answers. They too agreed it was them after all these years!!! Everything, all the misery of 17 years, slotted into place. There was now an answer to all the problems there had been (for about 18 years in my son's case ) and Asperger's was the reason. BUT I have never been able to get the condition officially diagnosed by any medical professional. Our family doctor, who I have a lot of respect for (He looked after all my pregnancies) seemed quitedefensive to my suggestion that my son and daughterhad AS despite my saying my reasons for thinking so and us all studying the book and "checklist" in it. He was downright dismissive and wouldn't discuss my fears. Also a psychiatrist whosaw my daughter about 3 years ago challenged me by asking why was I so keen to have her condition/mindset (she wouldn't phrase it or name it other than say she thought my daughter was immature for her age) She asked WHY did I want a name for it and she too wasn't happy about it being called Asperger's Syndrome. I explained we wanted to know as it would answer the years of disruption and unhappiness of both my son and daughter. I said my daughterwas unable to mix and hold down a job in the normal sense and she was isolated and had no friends of her own age. I again referred to the concerns of the former psychiatric nurse and the RECOGNISED checklist of the condition in Tony Attwood's book.I also said that my daughter would then be eligible to apply for a benefit - think it's Incapacity Benefit to help with the quality of her life.This psychiatrist didn't want to get involved and made me feel as if I was simply being a"pushy" mother rather than a concerned one. She just said she would put my daughter on a waiting list tosee another psychologist for yet another assessment. Needless to say, 3 years down the line we never heard . Both my son and daughter now say "What's the point? No one does anything to help." So that's the experience in our family.
We get by as best we can.[:o] My son became sodisruptivealmost 3years ago that I had to ask him the leave the family household, he was tearing everyone apart.
RE: Autism in my family.
Thank crystalspirit for sharing your story. I have read alot in the healing forum about your son, and you had a tuff time. I know it will help many when they read your story.
love and blessings
lightwind
Wendy x
RE: Autism in my family.
Dear lightwinds [sm=hug.gif]
Ah, bless you for your kind comments.[sm=1kis.gif] Even if nobody read everything I posted above it made me feel better to put it into words!
I wish you and your Joshua all the best - will be thinking of you. I must admit that it helps when you realise you aren't alone in such experiences.......because I felt for many years I was banging my head against a brick wall [sm=banghead.gif]
Lots of love to you and everyone else dealing with the same issues in their families.
Crystal Spirit XXXXX
RE: Autism in my family.
I work with some children with ASD in a nursery and it is really inspiring to hear parents working so hard for their children. Keep it up because even if you feel like you do not have support and you are not getting anywhere I see the difference in the children whose parents are putting in the effort. They know that you care and will work hard for you.
Keep your spirits up.
Think good and it will be good.
Chaya.
Importance of nutrition
I have fairly recently discovered a nutritional supplement which gives you 46 of the most important nutrients we need on a daily basis, in a form which is very pleasant to take (drink which tastes like 'bubblegum' according to many, and tablets which can be easily crushed & taken with food), and because it helps to sort out digestive problems first, improving absorbtion & detoxing the body - it ensures that you get to absorb 98% of the nutrients it contains!! Very beneficial effects are being reported by people and families with autism spectrum disorders & would be well worth trying. It seems to help sort out the 'wiring ' of the body which may not be functioning in the normal way - certainly parents have reported that their children are much calmer and more relaxed, able to cope better. There are no chemicals or fillers added & it's from natural organic vegetable sources, so suitable for everyone.
If you'd like more info, let me know send me a PM or email me good luck!:)
My sister has severe autisum as well as epilepsy and Tuberiscurious (think I spelt that right). She has suffered with it all her life. She is 25 years old now. She is so enegjetic and is always full of life. She stays in a care home Monday- Friday and then comes homes at the weekend. Its hard knowing that I can only see her at the weekends and when we go to visit on Wednesday evenings but I have got used to it now. Sometimes I get upset because she cant do things that me and my other siblings can. She cant get married or have children or do anything like that and she cant communicate well with other people but at the same time I wouldnt change anything about her because she is so special and lovely.
My son is autistic and is 4.5 years old. Didn't know until he was a least 2. He's smart with letters and numbers, but he gets upset at weird things and it's hard to take him out in public. Has to eat a special diet all the time without sugars and breads. We love our son Derek very much but this is very stressful on the family...everyone keeps giving you different advice on how to handle him. He repeats the same things a lot. Can't carry on conversations or have friendships with kids his age.
I have fairly recently discovered a nutritional supplement which gives you 46 of the most important nutrients we need on a daily basis, in a form which is very pleasant to take (drink which tastes like 'bubblegum' according to many, and tablets which can be easily crushed & taken with food), and because it helps to sort out digestive problems first, improving absorbtion & detoxing the body - it ensures that you get to absorb 98% of the nutrients it contains!! Very beneficial effects are being reported by people and families with autism spectrum disorders & would be well worth trying. It seems to help sort out the 'wiring ' of the body which may not be functioning in the normal way - certainly parents have reported that their children are much calmer and more relaxed, able to cope better. There are no chemicals or fillers added & it's from natural organic vegetable sources, so suitable for everyone.
If you'd like more info, let me know send me a PM or email me good luck!:)
thank you very much for the info
blessings
Wendy x
My sister has severe autisum as well as epilepsy and Tuberiscurious (think I spelt that right). She has suffered with it all her life. She is 25 years old now. She is so enegjetic and is always full of life. She stays in a care home Monday- Friday and then comes homes at the weekend. Its hard knowing that I can only see her at the weekends and when we go to visit on Wednesday evenings but I have got used to it now. Sometimes I get upset because she cant do things that me and my other siblings can. She cant get married or have children or do anything like that and she cant communicate well with other people but at the same time I wouldnt change anything about her because she is so special and lovely.
your sister is so lucky to have a wonderful sister like you, hugs xx
blessings
Wendy x
My son is autistic and is 4.5 years old. Didn't know until he was a least 2. He's smart with letters and numbers, but he gets upset at weird things and it's hard to take him out in public. Has to eat a special diet all the time without sugars and breads. We love our son Derek very much but this is very stressful on the family...everyone keeps giving you different advice on how to handle him. He repeats the same things a lot. Can't carry on conversations or have friendships with kids his age.
No one in the world will know your son as much as you do, it may be hard to take him out in public, but do it anyway, you love him and thats all that matters, never feel alone, keep trying new things all the time with him, he one of god special children, tell your family and friend this, we learn alot from these children, do you believe in angels?
Your a special mum too xx
much love
Wendy x
Hello.
My niece has three children with autistic spectrum; also my son Joshua is still under hospital to be assessed for Aspergers Syndrome in November. My niece’s eldest is 13 years old Shara with Aspergers syndrome, Louise11 also Autistics and 3 year old Matthew also has Autism. They are wonderful children and full of love.
Louise has just change school and seems to be settling in ok. Shara is educated at home as she had a bad experience in her high school and could not go back.
Has anyone got storeys with families with Autism to share?
love and blessing
lightwinds
Wendy xx
My wife's brother has Asperger's Syndrome and is 34 and lives at home. My first son, at age 2 or 2 and a half, we realized was behind the other kids. He is on the austitic spectrum. He has emotional problems, can't pay attention for a long time, and gets upset at weird things. He can't interact with kids his age who say some pretty cruel things. He does fine with letters, numbers, and reading.
We are taking him to a place called Family Hope Center, that actually believes you can treat the brain. It is a slow, step by step process. If you overwhelm a kid with too much, he can go the other way. We may be getting a hyperbaric oxygen chamber as that has been very helpful with autistic kids. He creeps and crawls so many times a day, and is on a special diet. (No wheat, dairy, sugar) He's a great kid - my son's name is Derek. It is very stressful on the family trying to make decisions and feeling like your child's life can be negatively impacted by one bad decision.
My heart goes out to everyone on this thread! :grouphug:
I have practiced Christian healing all through my life and found it to be practical and effective. In fact Ace, I have written you a letter on
Below, to encourage all of you is a link to the account of healing of a little girl in India who had severe behaviour and communication problems:
[url]We began to see that our daughter was already complete[/url]
Love and peace,
Judy
My wife's brother has Asperger's Syndrome and is 34 and lives at home. My first son, at age 2 or 2 and a half, we realized was behind the other kids. He is on the austitic spectrum. He has emotional problems, can't pay attention for a long time, and gets upset at weird things. He can't interact with kids his age who say some pretty cruel things. He does fine with letters, numbers, and reading.
We are taking him to a place called Family Hope Center, that actually believes you can treat the brain. It is a slow, step by step process. If you overwhelm a kid with too much, he can go the other way. We may be getting a hyperbaric oxygen chamber as that has been very helpful with autistic kids. He creeps and crawls so many times a day, and is on a special diet. (No wheat, dairy, sugar) He's a great kid - my son's name is Derek. It is very stressful on the family trying to make decisions and feeling like your child's life can be negatively impacted by one bad decision.
Hello, thank you for sharing about your family, my son is now 11 years old and we still atten hospital once a year, seems this is the last year,dose your little ones have games console or your wife brother? I was looking at Doctor program on TV thats shown from usa, they been doing a study on children with adhd and autism, they have been studying children they let play certain games on computer and console, it seems to help them, not shore on all details but looking it up.
The thing is my son has played on consol while growing up, he used to jump up and down alot while playing and years went by I notice he stoped doing it, it seem to stimulate the brain and he went on to games he'd finish in a day, bit expensive, but well worth it. He likes to play the hardest games he can now lol
I know to some they will disagree, but I know it help him.
He been allowed to play each day for a few hours or when he needed too, my son has improved so much, he just won an award for "Best Pupil Of The Term" for the most Improved Learner.
As well as food changes and angel help and loads of love and understanding and prayers.
My sister grandchildren, have all improved in many ways too.
I know each autistic child is different, but there always hope.
love and blessings
Wendy xxx
Hello to you Lightwinds,
I belive you gave me a set of your wonderful Native American Tarot cards, many moons ago. The set i still use and cherish.
If memory serves me, your son Joshua had just been diagnosed 'for want of a better word' and you were reassuring me, as hubby and i believed our now 9yr old had Autism. Well eventualy he was seen, though no thanks to any of the 'Professionals'. He, as we expected has ASD, we home educate him and all his brothers now. Now have 5 boys and are pretty damn sure that are youngest 2yrs has Autism too. However even though the Childrens centre that see's our 9yr old has said they will happily see our youngest, just to have the GP refer him. We have been told by GP we have to follow procedure and they are unable to refer us to the very doctor who see our other Autistic son and is happy to seeour youngster! It disgusting and crazy the way the system works and how flammin slow it is!
We are more concerned by younger son too, as he seems far more advanced with his Autistic traits, plus has a violent side and genuinely scares me at times, though he's an amazingly loving cute child. He spend masses of times hopping and jumping at speed from one side of the room to the other and appears oblivious to our calling his name. He has his tounge out more than in, makes humming noises when eating, as 9yr old did for several years. The lack of sleeping is the hardest part, as both 9yr old & 2 yr old can keep going on such a small amount of sleep and are prone to night terrors. So i'm functioning on totally shattered mode most of the time. I feel we have had no help (with the exception of Ryegate Childrens Centre) though they i feel could have done more! We have reapplied numerous times for mobility as 9yr old is terrified of public transport (noise , people, space) But we get turned down each time, so plod on, on our own. But are happy doing our own thing and knickers to the rest of them, we've got this far alone, we'll do the rest in same way!
Thats enough for now, other than to say my heart goes out to all those in our position and as the saying say's, Together we can make a difference!:grouphug:
Rach x
Free Autistic spectrum disorder sponsorship programme
Hello there,There is an organisation in the US which offers a free sponsorship programme for anyone with Autism or Downs syndrome.
You do not have to go to the US for it.
My son has been on the programme for the last year and it has made a huge difference.
Contact me if you want to know more. or go to
There are testimonials on the site from parents of children who have been helped.
this is the link to the sponsorship info page:
Hello to you Lightwinds,
I belive you gave me a set of your wonderful Native American Tarot cards, many moons ago. The set i still use and cherish.
If memory serves me, your son Joshua had just been diagnosed 'for want of a better word' and you were reassuring me, as hubby and i believed our now 9yr old had Autism. Well eventualy he was seen, though no thanks to any of the 'Professionals'. He, as we expected has ASD, we home educate him and all his brothers now. Now have 5 boys and are pretty damn sure that are youngest 2yrs has Autism too. However even though the Childrens centre that see's our 9yr old has said they will happily see our youngest, just to have the GP refer him. We have been told by GP we have to follow procedure and they are unable to refer us to the very doctor who see our other Autistic son and is happy to seeour youngster! It disgusting and crazy the way the system works and how flammin slow it is!
We are more concerned by younger son too, as he seems far more advanced with his Autistic traits, plus has a violent side and genuinely scares me at times, though he's an amazingly loving cute child. He spend masses of times hopping and jumping at speed from one side of the room to the other and appears oblivious to our calling his name. He has his tounge out more than in, makes humming noises when eating, as 9yr old did for several years. The lack of sleeping is the hardest part, as both 9yr old & 2 yr old can keep going on such a small amount of sleep and are prone to night terrors. So i'm functioning on totally shattered mode most of the time. I feel we have had no help (with the exception of Ryegate Childrens Centre) though they i feel could have done more! We have reapplied numerous times for mobility as 9yr old is terrified of public transport (noise , people, space) But we get turned down each time, so plod on, on our own. But are happy doing our own thing and knickers to the rest of them, we've got this far alone, we'll do the rest in same way!Thats enough for now, other than to say my heart goes out to all those in our position and as the saying say's, Together we can make a difference!:grouphug:
Rach x
hello Rach, gosh it been a while, yes the cards, how lovely to know you still have and use them them xx
My son has still not be diagnosed, few years ago doctor wanted to give him retalin for Adhd, but I refused and knew he did not have Adhd.
I was right and years down the line Joshua has really inproved in so many ways.
We had it tuff and I understand what you been through and still go through, they decide that this year they are going to sign him off from the hospital with no diagnosed, so I can exscept that the main person to understand his little ways will be me and I just educate others in understanding Joshua.
He attened hospital since 3 years old and I lost count at the different doctor we seen.
My heart and prayer are with you and your children, PM me ANYTIME if you like to just chat and get things off you chest.
much love
Wendy xxx
I put a photo up to show my Joshua at leaving assembly in church with all the 6 year children and whole school.
This is the surprise Joshua got when they called him out in the church.
Our children have that special something within, even through their little lives can hold ups and down.
22 July 2009
l
Just wanted to congratulate Joshua on his prize - hearing such personal and positive news, and seeing the pictures, makes being on HP a pleasure! Well done!
Also, nice to see you back, Lightwinds.
Much love xxx
Just wanted to congratulate Joshua on his prize - hearing such personal and positive news, and seeing the pictures, makes being on HP a pleasure! Well done!
Also, nice to see you back, Lightwinds.
Much love xxx
Thank you very much.
Its good to be back again, I'm bit like a boomarang lol
love and blessings
lightwinds
Wendy xx
Hi Wendy,
Lovely to hear back from you, sorry you've struggled for so long to have Joshua diagnosed!
As you say, know how that is!
Thrilled to see the photo and how well Joshua has come one and whathe's achieved.
Much love and Light to you both xx
mentalmomma, thank you, sorry bit late getting back, he settleing well at high school.
Hugs xxxxx
Wendy
Dairy products
On the same line: my 3 years old son has totally stopped being regularly ill with stron caughs and runny nose simply since we've stopped giving him any cow milk products. Within 1 week his health has drastically improved... Before that, we had gone to 3 diiferent doctors who were obviously unable to solve the problem... After that (this was 1,5 years ago) I read an article written by a Parisian doctor who who explained that 80% of his patients who came to solve headache problem would see that problem totally desapear after 1 month of quiting taking dairy products.
Thought this could be of interest to you.
Chris
Has anyone heard about the latest news on autism - which I saw on TV here in Oz just last week - where parents of autistic children had had VERY FAVOURABLE results by cutting out wheat and dairy products from their childrens' diets...some parents were in tears (of joy) saying they could not believe the difference in their children.....do try it, and see if it helps.
Autism is a gift!
Having worked with a large number of Young People with varying degrees of ASD in education for a number of years all I can say is that every single one of them was totally unique, fascinating and wonderful. My overarching response now, though, is to avoid accepting a label or diagnosis or even thinking of it as a limitation - its just a fascinating difference. I learned to never accept the label applied to so many young people and treat them the same as another young person - as a magical individual who gave me an opportunity for learning about the world.