Lost and confused
 
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Lost and confused

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

hello all
Glad to find this site. I'm 61 year old female and according to 2 doctors and many specialist I am in tip top health.
Here is my long list of my many symptoms which according to these well educated people don't mean a thing.
Head twitching
Eye pain
Eyes sensitivitie to light
Dizzy
Light headed
Pain up back of neck
Head ache
No sense of smell or taste
Nausea
Calf pain
Tingling hands feet face head
Low blood pressure and some days it feels like every nerve is on the outside of my body.

20 Replies
Posts: 4259
(@jabba-the-hut)
Famed Member
Joined: 20 years ago

Have you spoken to a homeopath?

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amy green
Posts: 2258
(@amy-green)
Noble Member
Joined: 18 years ago

What specialists have you seen? Opticians?

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Energylz
Posts: 16602
(@energylz)
Member
Joined: 21 years ago

hello all
Glad to find this site. I'm 61 year old female and according to 2 doctors and many specialist I am in tip top health.
Here is my long list of my many symptoms which according to these well educated people don't mean a thing.
Head twitching
Eye pain
Eyes sensitivitie to light
Dizzy
Light headed
Pain up back of neck
Head ache
No sense of smell or taste
Nausea
Calf pain
Tingling hands feet face head
Low blood pressure and some days it feels like every nerve is on the outside of my body.

Aside from the other things, I'm surprised they would say you're in "tip top health" if you are showing low blood pressure. Are you sure it was doctors you saw?

Some of the other things could be related to the blood pressure, but could also be related to other things (we cannot diagnose - and it would be legally wrong of us to as we are not medically qualified).
For example, Sensitivity to light, headaches, eye pain and nausea are common symptoms for migraines, which can hit people slightly or really knock them about; and in themselves are related to epilepsy.
However, to determine if that's the case, the doctor/specialists should test for epilepsy and migraines as they have ways to determine if something like that is the cause.
It's possible that those things could also relate to non-epileptic seizures, dissociative disorder, conversion disorder or one of the many ways that functional neurological disorders can manifest. Essentially, those things can relate to stress or some trauma (small or large) or change in life that acts as a trigger. Unfortunately many doctors and specialists don't know about, don't understand or just miss the possibility of such disorders. A good book that I've just read, if you want to read about that area to perhaps discuss it with your doctor, is called "It's all in your head" by Suzanne O'Sullivan. She explains how, although the symptoms are very very real, the cause is not biological in nature, and if that's proven to be the case, then there are ways to treat it.

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

What specialists have you seen? Opticians?

Waiting on appointment for opto. Seen heart, hard heart and BP monitors, gastro, vascular, kidney, urologist, tested for nerve damage fingers and toes, had MRI shows nothing Been given meds for dizzy, nausea, depression, nerves. BP in doctors office is 110/55. I am now looking for naturopathic Dr to have test run

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Ray of Light
Posts: 68
(@ray-of-light)
Trusted Member
Joined: 9 years ago

Hi

Several things occur as I read your list of symptoms. First off, you maybe deficient in magnesium; every cell in the body needs magnesium and our vegetables and fruit are now grown in soil that is severely depleted of this mineral. A large majority of people are deficient in this mineral and a deficiency can cause dizziness and vertigo. It may well explain the calf pain as well. Get a good quality magnesium supplement such as Biocare Magnesium EAP.

Secondly, do you have wi-fi in your house or office. Some people can be very sensitive to this.

Low blood pressure in itself is not a problem unless it causes a problem. I have low blood pressure myself and it doesn't cause me any problems.

I would stop taking the meds you've been given, they're clearly not helping and more than likely causing some of these symptoms as well as overloading your body with medication.

Diet: cut out all processed food, fizzy drinks, alcohol, sugar, cakes etc. I'm sure you know what is good and bad.

Can you link when this began with any stressful experiences - stress can do strange things to the body.

See if you can find a good cranio sacral therapist - it's a life saver.

Best wishes

Ray

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amy green
Posts: 2258
(@amy-green)
Noble Member
Joined: 18 years ago

I would just add that magnesium works with calcium, synergistically so they are best taken together.

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Ray of Light
Posts: 68
(@ray-of-light)
Trusted Member
Joined: 9 years ago

I take magnesium but I don't take calcium with it - I eat a lot of whole fat dairy products so I get enough calcium through my diet.

Ray

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amy green
Posts: 2258
(@amy-green)
Noble Member
Joined: 18 years ago

I take magnesium but I don't take calcium with it - I eat a lot of whole fat dairy products so I get enough calcium through my diet.

Ray

Fair enough. I just wanted to point out that they work together, i.e. taking magnesium but being low in calcium is counter productive.

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Energylz
Posts: 16602
(@energylz)
Member
Joined: 21 years ago

I would stop taking the meds you've been given, they're clearly not helping and more than likely causing some of these symptoms as well as overloading your body with medication.

It is not legal to tell people to stop taking their medication unless you are medically qualified to do so, and the client is your patient.
I would not recommend anyone stop taking their medication without consulting with their medical practitioner/doctor

Diet: cut out all processed food, fizzy drinks, alcohol, sugar, cakes etc. I'm sure you know what is good and bad.

That is far too general a statement. As bad as the government advice in the past to cut out salt from your diet to help reduce the risk of heart attacks. I know someone who took this advice literally, and avoided as much salt as was possible, with serious health consequences. The body needs salt, as it's an electrolyte used for the body to function properly. Likewise the body needs certain sugars.
Please avoid making such literal over-statements.

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

I have been following paleo diet with fish. I have not eaten sugar or salt for years but heart specialist asked me to add a bit of salt to a few meal weekly. (It makes my food taste funny lol) I see the vascular Dr on Friday for results and have appointment end of month with natural path

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Posts: 861
(@mountaineer)
Prominent Member
Joined: 13 years ago

Welcome to Healthypages.

I would have a thorough test of your vitamin and mineral levels.
(I would agree with what Ray said, a lot of your symptoms sound like magnesium deficiency.)

You're on the Paleo diet? A lot of people have trouble with that.
It might be worth trying something totally different for a week or so and see if it changes anything for the better.

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

Well I've been back to the GP requesting to see another Nuro. I've have low blood pressure so because of this had full blood work again, heart monitor all ok. Saw the Nuro recommended for all symptom which seem to have increased. He looked at past MRI CT and other tests, did a nerve test and basically said its in my head. I told him it was in my head but its physical not mental and left. I am waiting for new referral. as my symptoms are continuous only going up and down from day to day never leaving with something new each week. this is why GP thinks it's not MS and all the tests are negative.

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Energylz
Posts: 16602
(@energylz)
Member
Joined: 21 years ago

Ask if they think it may be FND (Functional Neurological Disorder).

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

Sounds as bad as all the rest. If we had the money wasted on guns bombs and world distruction think what good we could do with it

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Energylz
Posts: 16602
(@energylz)
Member
Joined: 21 years ago

Sounds as bad as all the rest. If we had the money wasted on guns bombs and world distruction think what good we could do with it

Sorry, I don't understand what relevance that has to your issue.

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Tashanie
Posts: 1924
(@tashanie)
Noble Member
Joined: 15 years ago

Well I've been back to the GP requesting to see another Nuro. I've have low blood pressure so because of this had full blood work again, heart monitor all ok. Saw the Nuro recommended for all symptom which seem to have increased. He looked at past MRI CT and other tests, did a nerve test and basically said its in my head. I told him it was in my head but its physical not mental and left. I am waiting for new referral. as my symptoms are continuous only going up and down from day to day never leaving with something new each week. this is why GP thinks it's not MS and all the tests are negative.

Why does the suggestion that your symptoms start in your mind upset you? . Just because a problem has its roots in the mind does not mean the symptoms are not very physical and very real. Many physical illnesses are now recognised to be triggered or worsened by stress and that includes neurological illnesses like Parkinson's disease and MS as well as physical illnesses like IBS. You speak as if mind and body are separate. They are not

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Posts: 6
Topic starter
(@rvwishing)
Active Member
Joined: 8 years ago

Why does the suggestion that your symptoms start in your mind upset you? . Just because a problem has its roots in the mind does not mean the symptoms are not very physical and very real. Many physical illnesses are now recognised to be triggered or worsened by stress and that includes neurological illnesses like Parkinson's disease and MS as well as physical illnesses like IBS. You speak as if mind and body are separate. They are not

In 2009 I went to GP extreme abdominal pain, diarrhea, nausea he sent me for many abdominal tests all came back negative and nothing is wrong even when I continued to return. I then switched to new GP he was very thorough with test after test. He then asked me to come in with my husband and told him there was nothing physically wrong with me and I walked out as he was telling him that he should consider my seeing a psychiatrist. This has taken 9 months and 11 doctors 3 who said my problem was not physical . I found another GP and took my 1inch fill with me. He listened to my issues and said you have a parasite, did a simple poop test and low in behold that is what was wrong. Sent me to specialist for treatment (Turns out I was allergic to first choice drug) 17 months after first going to doctor 13 doctors in total finally the parasite was gone but with substantial damage to my insides. So yes when someone says its in my head I get a little annoyed

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Posts: 1838
(@jnani)
Noble Member
Joined: 15 years ago

hello all
Glad to find this site. I'm 61 year old female and according to 2 doctors and many specialist I am in tip top health.
Here is my long list of my many symptoms which according to these well educated people don't mean a thing.
Head twitching
Eye pain
Eyes sensitivitie to light
Dizzy
Light headed
Pain up back of neck
Head ache
No sense of smell or taste
Nausea
Calf pain
Tingling hands feet face head
Low blood pressure and some days it feels like every nerve is on the outside of my body.

Hi Rvwishing
It is funny that we may ask for help and get all the help we need, yet not find the resolve to implement any of it in our lives.

The buck stops with you. People may give advice, excellent suggestions yet, ultimately it is a solid decision that only you can make to find functionality with in your body-mind as well as in life. Seeking help is a double edged sword, it may give valuable support when needed but downside can be that we may keep seeking help and get caught in this dynamic
Ultimately, we have to pause, stop gather ourselves and find inner resolve to overcome whatever challenge we face in our lives...that is the point when the problem starts to yield to you.

The one thing I ask people is to go get diagnosed by doctor, primarily to rule out any nasties....fortunately in your case the doctors have already done that. Which means it is something you can sort on your own. But you will have to withdraw focus from problems/symptoms and refocus onto organs, physical faculties that function fine rather than those mysterious symptoms.

Body and mind are in a rut. Pain in the body drives mind nuts and mind then keeps the body in discomfort. Self perpetuating, if you know what I mean....a cycle that only you can break

Rather than tackling it from body perspective apply the 'mind over matter' trick. Kinda shrug off with nonchalance, have a swag if you like, in your inner talk. "I am alright, I deal with this easy, it ain't no problem at all. I sort it, I always do...." you get the picture. You have done that in your life many times...you absolutely have. Women deal with things. Strong and resilient creatures, we are!

Kinda shrug off and be a bit of a devil...throw the gauntlet and decide to have the last laugh?
Go out, walk, meet friends, focus on things that are functioning fine in your life instead.

Our mental focus can get stuck on the problems, so all your energy flows towards problems....keeping one firmly bonded to problems. Gently divert it to things that make you happy instead, slowly slowly catchy monkey. It is not overnight but over a period of time you will find that the symptoms are faded and you have to focus to see them at all....

Some good advice has been shared here, use it but not revolve your entire life just to overcome your symptoms... First and foremost you have a life to live. Don't forget to do that!
May body find her balance

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Energylz
Posts: 16602
(@energylz)
Member
Joined: 21 years ago

In 2009 I went to GP extreme abdominal pain, diarrhea, nausea he sent me for many abdominal tests all came back negative and nothing is wrong even when I continued to return. I then switched to new GP he was very thorough with test after test. He then asked me to come in with my husband and told him there was nothing physically wrong with me and I walked out as he was telling him that he should consider my seeing a psychiatrist. This has taken 9 months and 11 doctors 3 who said my problem was not physical . I found another GP and took my 1inch fill with me. He listened to my issues and said you have a parasite, did a simple poop test and low in behold that is what was wrong. Sent me to specialist for treatment (Turns out I was allergic to first choice drug) 17 months after first going to doctor 13 doctors in total finally the parasite was gone but with substantial damage to my insides. So yes when someone says its in my head I get a little annoyed

Well, it's good that that one doctor believed it could be a parasite and then found it was and got that sorted.
However, that doesn't mean that that one parasite is responsible for all your symptoms (it may be, it may not, we are not qualified to tell). There are good doctors and bad out there, some who are up on the latest information and some who are stuck in their old ways or beliefs.
Just because a diagnosis comes back that says there is nothing physically wrong and that it's in the mind, doesn't mean that the symptoms are not very real, that the pains are not very real etc. The mind is a powerful part of our whole body. As en example, even simple things like thinking of something emotional can cause physical symptoms even if that's just making us cry, yet there is no physical cause for the crying.
The book I referred to earlier is by a consultant neurologist who has focused her attention of dealing with those cases that the other doctors and consultants can't find a cause for. Often she finds that there is some underlying cause to the symptoms, though they are not physical, but rather some 'trauma' that has happened in the past, which could be something obvious (e.g. abuse, accident or suchlike) or something more subtle (e.g. stressful changes at work, the birth of their child changing their life situation etc.) and as such the way to deal with those types of causes are open to many options, one of which is a psychiatrist. Unfortunately many people see such a diagnosis and suggestion of treatment as though the person is saying they are 'mad' or suchlike, which is an unfortunate stigma to bear in society, but the truth is that mental health issues are more widely recognised and accepted nowadays, especially as almost every person will have some level of mental health issue at some point in their life (whether they recognise it themselves or not). Of course it doesn't have to be a psychiatrist that helps with the issue, there are other options... hypnotherapists, timeline therapists, cognitive behavioural therapists and suchlike.
So, you could spend a lot of time and effort seeing a lot of people, determined to find a clear physical cause for symptoms when there isn't actually a physical cause to be found... or you could consider the option that the cause may be in the mind, and seek assistance in determining what the underlying cause/trauma is and then dealing with it. As Jnani says, it's up to us as individuals to make the choice to change it, we cannot rely on others magic up some cause where there is none and then treat it.

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Posts: 176
 Mtbw
(@mtbw)
Estimable Member
Joined: 5 years ago

hello all
Glad to find this site. I'm 61 year old female and according to 2 doctors and many specialist I am in tip top health.
Here is my long list of my many symptoms which according to these well educated people don't mean a thing.
Head twitching
Eye pain
Eyes sensitivitie to light
Dizzy
Light headed
Pain up back of neck
Head ache
No sense of smell or taste
Nausea
Calf pain
Tingling hands feet face head
Low blood pressure and some days it feels like every nerve is on the outside of my body.

Urgently change previous doctors for adequate doctor. I see several conditions and one of them needs to be seriously investigated.

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